What is autism and why is it difficult to get it diagnosed? In her talk Carrie shares her own personal journey towards diagnosis of autism: why it took 35 years, and what are the root causes for such invisible diversity?
Carrie Beckwith-Fellows is a freelance writer and vlogger from England. She has written for various online publications, including The Huffington Post, Autistica, the National Eating Disorders Association USA and her own blog, where she shares the reality of living with autism and Ehlers Danlos Syndrome, a complex and life-limiting illness. Diagnosed as autistic at the age of 35 has allowed Carrie to explore the world again from a new perspective. Aware that a late diagnosis can cause issues with identity, relationships and perception, she launched a website that explores the unique post-diagnosis experience to raise awareness and to support other autists diagnosed as adults.
This talk was given at a TEDx event using the TED conference format but independently organized by a local community. Learn more at https://www.ted.com/tedx Video Rating: / 5
Ronit takes a critical look at autism and the autism services industry and identifies opportunities for the advancement of services and business. Dr Ronit Molko is a dynamic senior executive and entrepreneur recognized for combining strategic vision and technical expertise to drive business initiatives. In 2001, Dr. Molko cofounded Autism Spectrum Therapies Inc. (AST) in California, which grew into a highly respected, multi-state provider of services for individuals on the autism spectrum. In 2014, she sold her company to Learn It Systems, a private equity backed strategic buyer, and served as President of Autism Services for the combined family of companies until early 2016.
Today, as CEO and Principal of Empowering Synergy, Dr. Molko conducts due diligence for investors and consults as an expert in the field of service delivery for healthcare, with a special focus on behavioral healthcare and companies that provide services to families affected by autism and developmental disabilities.
In 2018, she released her latest work, “Autism Matters: Empowering Investors, Providers and the Autism Community to Advance Autism Services” published by ForbesBooks in which she takes a critical look at the autism services industry and identifies opportunities for advancement of services and business.
A graduate of Harvard Business School’s three-year Owner/President Management program, Dr. Molko holds a Ph.D. in Applied Behavioral Science and Family Life from the University of Kansas and a master’s degree in Psychology from Claremont Graduate University. She is a licensed clinical psychologist in both California and Washington, and a Board-Certified Behavior Analyst.
Dr. Molko is currently a board member of the Galt Foundation, which places individuals with disabilities in the workforce, and the Los Angeles Chapter of the Autism Society of America. She has been actively involved in many healthcare-based committees and organizations throughout her career and has received multiple awards in recognition of her business prowess and leadership abilities. Most recently, she was recognized with a 2017 Woman of Influence Award by the Los Angeles Business Journal. This talk was given at a TEDx event using the TED conference format but independently organized by a local community. Learn more at https://www.ted.com/tedx Video Rating: / 5
What causes a sensory meltdown? When is a meltdown a tantrum, or both? What stages are there in a meltdown and how do you prevent meltdowns from peaking? We aim to answer those questions and help the autism community. Video Rating: / 5
Chris Varney is an advocate for children’s rights. His advocacy began as a 16-year-old Youth Ambassador for World Vision during which he became active in anti-poverty campaigning. He went on to become National Co-Director of World Vision’s youth movement and later, the 2009 Australian Youth Representative to the United Nations. As Youth Representative he put together a book Dear Kevin which helped catalyse many practical outcomes for vulnerable children and youth. For his efforts he has received the 2011 Monash University Student Alumni Award, the 2012 National Award for Youth in Advancing the Legal Rights and Interests of Children and Young People and the 2012 Future Justice Medal.
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About TEDx, x = independently organized event
In the spirit of ideas worth spreading, TEDx is a program of local, self-organized events that bring people together to share a TED-like experience. At a TEDx event, TEDTalks video and live speakers combine to spark deep discussion and connection in a small group. These local, self-organized events are branded TEDx, where x = independently organized TED event. The TED Conference provides general guidance for the TEDx program, but individual TEDx events are self-organized.* (*Subject to certain rules and regulations) Video Rating: / 5
Autism Spectrum Disorder is often very misunderstood. What is it, and what causes it?
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Author, Advocate and Autism Mom Nancy Alspaugh-Jackson does an in depth interview with Dr. Temple Grandin while at a recent Future Horizons Autism Conference. The women speak openly about the challenges and blessings that are often a part of a life on the Autism spectrum.
Autism Live is a production of the Center for Autism and Related Disorders (CARD), headquartered in Tarzana, California, and with offices throughout, the United States and around the globe. For more information on therapy for autism and other related disorders, visit the CARD website at http://centerforautism.com
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Many requests have been made for this video and we aim to help, rather than cause undue concern, for those looking for more information in helping little ones who may have autism. Thank you.
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April is Autism Acceptance Month, and as such I thought it was appropriate to make a video talking about Autism and the Autism Spectrum representation in the media. I realize that I’m uploading this video in May, but it took me a long time to make.
There’s many creative famous people with on The Spectrum (or with ASD). Including Dan Aykroyd, Dan Harmon and Satoshi Tajiri. Autistic characters in the media also include Rick Sanchez from Rick and Morty, Carl Gould from Arthur and Abed Nadir from The Community.
In today’s video we discuss basic Autism knowledge and terms, famous people on the spectrum, canon autistic characters as well as head canons, and harmful media tropes and portrayals of those on the spectrum.
Share your experiences and head canons in the comments down below! Hateful comments will be deleted. People reading through the comments are encouraged to report hateful and bigoted comments.
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RESOURCES & HELPFUL LINKS
Article About Bad Representation ► https://www.hollywoodreporter.com/news/why-good-doctor-is-bad-medicine-autism-1098809
Support & Learn About Autistic People ► https://autisticadvocacy.org/
Why Autism $ peaks is Awful ► https://autisticadvocacy.org/wp-content/uploads/2018/03/AutismSpeaksFlyer_color_2018.pdf
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People who fall into the high functioning portion of the spectrum often live lives just like anyone else who’s not on the spectrum. They are said to be higher functioning cognitively than others on the spectrum.
SYMPTOMS:
Just like anyone on the Autism Spectrum high functioning people can still struggle with communication, making eye contact, and socially interact overall. Since interacting with others can be so difficult, those who are high functioning often report feeling very anxious prior to a social gathering, and being wiped out afterward because it takes SO much energy to engage with others.
Anxiety, OCD, bipolar disorder & depression are the most common comorbidities with HFA, and research shows that OCD and HFA commonly occur together because they both are affected by any abnormalities in a person’s serotonin production. Based on that information we could conclude that all comorbidities can be caused and affected by serotonin changes. I also believe that because people with HFA are more aware of their differences from others they could feel anxious about interacting with people or even depressed about their struggle to connect. Sometimes having insight and awareness into our own conditions can be hard to handle, and could lead to other mental health issues.
People with HFA may struggle to understand jokes, or sarcasm from their peers. Therefore they can appear “mature for their age” but they are really just uncomfortable in social situations. They can have delayed initial speech, but later develop functional communication. They can have obsessive actions regarding appearance, cleanliness, fears and social situations, and also shortened attention spans.
TREATMENTS: ASD isn’t something that people grow out of, nor is it something that needs to be cured, but there are many supports:
1. Occupational therapy OT: an occupational therapist is there to help develop skills for handwriting, fine motor skills, and activities of daily living skills. 2. Speech therapy: a speech therapist helps your child learn spoken language and/or nonverbal communication skills.
3. ABA therapy: applied behavior analysis focuses on techniques that help guide learning and bring out meaningful and positive change in behavior. 4. Psychotherapy: psychotherapy uses a variety of techniques to help children who experience anxiety, depression, OCD, or other psychiatric systems that cause problems for the autistic child. 5. Floor time therapy: floor time activities derive from the idea that we as parents can help our children by meeting them on their level to expand circles of communication. 6. RDI therapy: relationship development intervention therapy is a family-based, behavioral treatment designed to address autism’s core symptoms by appreciating all perspectives, coping with change and integrating information from multiple sources such as light and sound.
7. PEC therapy: picture exchange communication is used with nonverbal autistic children to learn to communicate without words so that they can make choices and communicate their needs and minimize their behaviors so that they can be a much happier child.
8. Aquatic therapy: using swimming as therapy increases the effectiveness of all other forms of treatment by learning better balance, communication skills, sensory issues, and oral motor skills.
Other videos I watched this weekend:
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If you or someone you know is in immediate danger, please call a local emergency telephone number or go immediately to the nearest emergency room. Video Rating: / 5
Dustin is diagnosed with autism and developmental delays. He hopes people will take the time to have a conversation with him about lightning and chainsaws.
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What is it like to live with Asperger’s syndrome? Jordan Kamnitzer tries to answer that question in “Perfectly Normal,” this week’s Op-Doc. It’s beautifully directed by Joris Debeij, who frames Kamnitzer’s experiences and ideas with evocative cinematography and editing, giving us a beautiful but challenging glimpse into another way of being.
In a related essay, the writer Eli Gottlieb describes it as “a rare filmic experience of the sensory overload of autism … as Jordan, the articulate middle-aged subject of the film, speaks about his own condition, the music skitters and booms, rapid jump cuts intensify the sense of danger, and in this swelling moment of uncertainty, the viewer experiences a fleeting sense of what it might be like to live in a condition of permanent, anxious neural flood.”
Gottlieb grew up with a severely autistic older brother, but even after 40 years, “find[s] his emotional and cognitive process as fundamentally mysterious as ever. The impenetrability of autism, with its seemingly endless variants and its essential “otherness,” is its hallmark. All this renders Jordan’s testimony that much more useful and intriguing. He is a reporter at a hinge-point of consciousness, able to inhabit his condition while describing it for us — whether we are “neurotypicals” or lodged somewhere on the spectrum — with remarkable precision and insight.”
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Osmosis presents this thorough overview of Autism Spectrum Disorder, or ASD. Review information useful to medical students and medical residents about this condition including developmental milestones, diagnostic criteria and prevalence. You’ll find more resources, study guides, quizzes and reviews on Medscape.com. Join today for free.
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