We often hear about autism in men, but rarely in women. The Feed looks at three different generations of women living with autism and how the stigma of the condition is amplified.
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In case you weren’t aware, Autism Spectrum Disorder (or ASD) affects 1 in every 68 children, and are much more commonly diagnosed in boys. Some studies show that boys are four times more likely than girls to have an ASD, but new research suggests that it may appear differently in girls, and therefore go undiagnosed or possibly be misdiagnosed as something entirely different.
The criteria for diagnosing autism spectrum disorder (ASD)—a developmental condition that is marked by social and communication difficulties and repetitive, inflexible patterns of behavior—are based on data derived almost entirely from studies of boys. This lack of data surrounding how ASD may affect a female has lead to years of misunderstanding and misdiagnosis, especially for those girls on the higher functioning end of the spectrum. Research has shown that females who received a diagnosis of ASD at a very young age were much more affected by the ASD than their male counterparts. They showed lower IQs and extreme behavioral problems, whereas the boys who were diagnosed did not have to be so severe to get proper treatment.
In a very recent study (2016) they found that even the way that the brain processes social information is different based on the sex of the child. Boys with ASD use certain portions of their brain to manage social situations, and those regions are different than boys without ASD, so seeing those parts of their brain light up during a social interaction was an easy way to diagnose. However, in girls with ASD it’s not like that. In a girl with ASDs brain, it lights up in the same way that a non ASD boy’s would.
Why is that? We don’t know, and they are doing follow up research on this interesting finding right now, but this has already been supported by a completely different study conducted in Australia on 25 boys with ASD and 25 girls with ASD. Researchers believe that this occurs because of our sex hormones. We already know that men and women are very different, but maybe we don’t fully understand just HOW different we are.
They also believe that girls as much better at noticing and mimicking behavior, and will work really hard to appear completely “normal.” Therefore in order to properly diagnose a girl with ASD you will need to not just observe them, but also talk with them about their personal experience with socializing or managing change.
They also find that boys with autism are not really interested in socializing and when asked will report that they don’t really care if they have any friends. Girls on the other hand, do care, and show a much greater desire to connect.
They also found that girls with ASD don’t tend to have as much repetitive behavior as the boys, and many of their pastimes and interests are similar to other girls without ASD.
Last, they share that girls with ASD tend to be viewed as too much. Meaning they are often too intense, too sensitive, or too rigid.
Many girls have been diagnosed with OCD, ADHD, and even anorexia instead of ASD like they should have been. Anorexia in the female ASD population is much higher than non ASD girls, and they believe that many of the symptoms and profiles of the 2 diagnosis work together. Meaning that the rigidity, focus, and detail oriented nature of both ASD and eating disorders can mean that EDs are the way that ASD can show itself in the female population.
They also find that females with ASD (since they tend to take things literally and are direct) they can more easily fall victim to sexual exploitation (such as assault, abusive relationships, etc). They say this especially for females because just as we discussed earlier, they want connection, and are aware of their their struggle to make friends and build relationships. So they may be with someone just because they show them a little attention, or even if that attention isn’t kind or loving. So be careful.
RESOURCES:
Kansas City – program is called “Girls Night Out”
New York City – Felicity House
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OCD Video: https://youtu.be/xlqvwMTqzHY
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Everyday situations can be stressful for those on the autism spectrum. Step into the shoes of 16-year-old Layla as she attends a birthday party. Hear her inner thoughts and experience how overwhelming an occasion like this can be for her
Warning: This film contains effects which may cause anxiety for some viewers.
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Communication is a core deficit in autism spectrum disorders (ASD). In this one-hour lecture, terms related to communication are defined and typical communication development is reviewed. At each stage of typical acquisition differences seen in the communication of children with ASD are described and illustrated with video examples. A description of the aspects of communication that are unique to individuals with autism is also presented.
Abbie’s nightime routine isn’t all that different from everybody else”s except she is learning life skills during hers.
It would be so much easier in the moment to just do everything for my daughter that she struggles with but it will be harder for her and for us later on in life. We use these daily living experiences to teach her the life skills she needs to grow and thrive. Not every night looks like this. Sometimes she just falls asleep wherever she’s at and we get her to her room doing our best not to wake her up too much. This is an ideal night routine.
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Markus is autistic. The documentary follows him for a year and shows what it’s like to live with autism. He’ll probably never grow up, nor does he want to.
“Most people don’t understand that, even my parents think it’s bad,” says Markus. He spends a lot of his time playing with toys, while also dealing with the struggle for his father’s acceptance, and the question of what he can contribute to society. The documentary follows Markus for a year.
“I don’t want to be normal and part of the herd. I want to live how I want.” Markus lives in Duisburg in western Germany. His home is completely cluttered with toys, including noisy motion-activated frogs, a singing Elvis and an angry snowman that tells you to watch it! Markus plays happily with his toys for hours, listening to children’s stories and drinking hot chocolate. Despite his autism, he does allow people to get close. He has an eccentric style, with a Prince Valiant haircut, a laser pointer round his neck and colorful plastic figures clutched in his hand. Markus’s father in particular wants him to grow up. His mother takes good care of him, but she encourages him to go out and meet other people more. She worries he could become lonely. That’s how he discovered his love of people with Down Syndrome, who he calls his Downies. “They take me as I am. They don’t question my ways. That’s a nice feeling.” This documentary refers to questions as: what is autism? What are signs and symptoms of autism? How do autistic people behave?
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It’s estimated 7.5 million children in China are autistic, but many lack proper diagnosis or treatment, often because their families simply can’t afford it.
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America’s Got Talent | Season 14 | Episode 1 | Auditions
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In season 14, NBC’s America’s Got Talent follows Simon Cowell, Julianne Hough, Gabrielle Union, Howie Mandel, and host Terry Crews in their talent search, showcasing unique performers from across the country.
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In season 12, NBC’s America’s Got Talent follows Simon Cowell, Heidi Klum, Mel B and Howie Mandel in their talent search, showcasing unique performers from across the country.
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ABOUT AMERICA’S GOT TALENT
Creator and Executive Producer Simon Cowell returns to the judges’ panel along with Howie Mandel. Also joining the panel this year are two fresh faces – award-winning actress, author and producer Gabrielle Union and Emmy Award-winning choreographer, actress, singer and dancer Julianne Hough. Terry Crews, who made a big splash as the host of the inaugural series “America’s Got Talent: The Champions” earlier this year, joins as host for “America’s Got Talent.” With the show open to acts of all ages, “America’s Got Talent” continues to celebrate the variety format like no other show on television. Year after year, “America’s Got Talent” features a colorful array of singers, dancers, comedians, contortionists, impressionists, magicians, ventriloquists and hopeful stars, all vying to win America’s hearts and a million prize.
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The Autism Hiring Program at Microsoft is part of our Inclusive Hiring initiative. Learn more at http://microsoft.com/inclusivehiring
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The Aspire program at MassGeneral Hospital for Children helps children, teens and adults with high cognitive autism spectrum disorder develop the skills necessary to live full, independent lives. We asked Aspire participants five questions about autism. Their answers will surprise and enlighten you. Produced by Atlantic Public Media (www.atlantic.org) for Massachusetts General Hospital’s Aspire program. Animation by Hannah Jacobs. Music by Stellwagen Symphonette and Podington Bear.
To learn more about Aspire, visit: http://www.massgeneral.org/children/aspire/overview.aspx
How a girl with autism talks. I captioned all of Abigail’s communication while we hung out and did chores during the day. See if you can find any that I missed and comment down below. Also, some tips on keeping your kids engaged during breaks from school. I used her visual schedule to keep her on task and we did some at home ABA therapy.
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One of the best videos Ive seen explaining what Autism is and how we are all the same. Must watch. Kudos to the creators. I DID NOT create this video. I show it because I teach first responders how to interact with ind on the spectrum. More can be found out about the project and team of creators here http://amazingthingshappen.tv/
